It seems like an eternity since we had our beautiful son at home with us, since we actually really felt like a family of six. I worry some days that I took those weeks for granted by thinking that we had years to spend together. When I walk through my house, seeing Garrin’s baby things […]
Tag: pulmonary hypertension
Another Whirlwind
The last ten days have been a whirlwind. While rocking the home vent on his very first attempt, Garrin got an ear infection. True to form, his only symptom was a dramatic increase in oxygen which prompted a septic workup and the return of the hospital vent. After a short 36-hour break and a burst […]
This Sucks!
I’m just going to say it: THIS SUCKS! It sucks that Garrin was born 17 weeks early. It sucks that he had to spend 147 days in the hospital before going home. It sucks that his time at home was cut short when he was admitted to a new hospital. It sucks that he is […]
When He Almost Died
Garrin got his fifth, and hopefully last blood transfusion yesterday — I know, I’ve said that before. So far today has been pretty boring. It was a feeder/grower kind of day. During rounds, the doctor indicated that Garrin will have another echocardiogram next week as part of protocol and to determine if he is suffering […]
