Perspective

This kid was happy as a clam to move into his new, big boy bed in a larger room this week. You’d never know it by looking at him, but Garrin still has caronavirus, one of the viruses that causes the common cold. Unfortunately, the virus makes it difficult for doctors to know what is […]

Checking the Boxes

To stay off the tube, Garrin must □ gain weight, □ maintain appropriate oxygen saturation while weaning oxygen, and □ diffuse and exhale an appropriate amount of carbon dioxide. Since being put on CPAP, he has been able to check each of these three boxes, avoiding intubation.  Unfortunately, he was not able to check any […]

In the Light of Day

Everything looks better in the light of day, even more so after a few hours of sleep, and this situation is no different. On Tuesday, we received a phone call indicating that Garrin’s overnight oxygen saturation trend analysis from last week revealed significant desaturations. These results in combination with Garrin’s increased oxygen needs at home […]

It Looks Bad

I cannot breathe. Things are bad. The doctor talks about them getting worse. There is no way to tell how far along in the caronavirus cycle he is. Or how bad it will get. His lungs are still bad. A virus is the very last thing he needed. We knew that. We did everything we […]

Graduation

Getting to this day would not have been possible without the nurses and NNPs.  They are some of the most intelligent and compassionate human beings I know. They provided Garrin with the highest level of health care possible. They spent countless hours getting to know him and his quirks, and they went to bat for […]

Busting Out

Guess what?!  The change to Enfamil AR worked!  Garrin’s NG tube was pulled on Friday, and barring any complications or shenanigans from Garrin, we are busting out of this joint by the end of next week‼️ We have already started working on the “Journey to Home” checklist. Safe sleep and shaken baby videos ✔️ Hearing […]