In the Light of Day

Everything looks better in the light of day, even more so after a few hours of sleep, and this situation is no different. On Tuesday, we received a phone call indicating that Garrin’s overnight oxygen saturation trend analysis from last week revealed significant desaturations. These results in combination with Garrin’s increased oxygen needs at home […]

It Looks Bad

I cannot breathe. Things are bad. The doctor talks about them getting worse. There is no way to tell how far along in the caronavirus cycle he is. Or how bad it will get. His lungs are still bad. A virus is the very last thing he needed. We knew that. We did everything we […]

Graduation

Getting to this day would not have been possible without the nurses and NNPs.  They are some of the most intelligent and compassionate human beings I know. They provided Garrin with the highest level of health care possible. They spent countless hours getting to know him and his quirks, and they went to bat for […]

Busting Out

Guess what?!  The change to Enfamil AR worked!  Garrin’s NG tube was pulled on Friday, and barring any complications or shenanigans from Garrin, we are busting out of this joint by the end of next week‼️ We have already started working on the “Journey to Home” checklist. Safe sleep and shaken baby videos ✔️ Hearing […]

Blazing His Own Trail

Guess who’s on low flow AND working on eating‼️ Hint: He’s an 8 lb 2 oz miracle that is blazing his own trail. It’s Garrin‼️ Our big boy got moved to low flow yesterday, against the recommendation of the respiratory therapist, and he’s rocking it. One of our absolutely favorite primary nurses moved Garrin to […]

This Kid

There is never a dull moment with Garrin.  We went back up to the hospital last night to take up some more breast milk. Almost as soon as we walked in the door, Garrin started having clustered Brady episodes. He didn’t tolerate either of us holding him, and he continued to Brady over and over […]