This time last year, we were ringing in the new year with hope and excitement. Just weeks into 2019, we said our goodbyes to the hospital that had become our home away from home and our newfound family of doctors and nurses. We drove away from the hospital feeling like first-time parents all over again. […]
Tag: Journey to Home
Finding Our Way
It’s hard to believe that Garrin has already been home for more than two weeks. What an amazing and challenging whirlwind it has been! Throughout the last two weeks, I have been reminded of the ways that pharmaceutical companies, insurance companies, and even home health companies put profit over patients’ well being. I’ve spent hours […]
Graduation
Getting to this day would not have been possible without the nurses and NNPs. They are some of the most intelligent and compassionate human beings I know. They provided Garrin with the highest level of health care possible. They spent countless hours getting to know him and his quirks, and they went to bat for […]
Busting Out
Guess what?! The change to Enfamil AR worked! Garrin’s NG tube was pulled on Friday, and barring any complications or shenanigans from Garrin, we are busting out of this joint by the end of next week‼️ We have already started working on the “Journey to Home” checklist. Safe sleep and shaken baby videos ✔️ Hearing […]
