The “If” is Now the “When”

The “if Garrin gets a tracheostomy” has transitioned to “when” he gets it.  I’ve gotten second, third, and fourth opinions, and the consensus is that yes, Garrin will undergo a tracheostomy, a procedure where a surgeon creates an airway to be used for long-term mechanical ventilation, as well as a gastrostomy, a procedure where a […]

A Trach in His Future?

This precious boy and his mom had another eventful day today. I dropped my three older kiddos off at school this morning, so I missed morning rounds. By the time I got to the hospital, the nurse was preparing to give Garrin not one but two IVs in preparation for his fourth blood transfusion. Because […]