Blazing His Own Trail

Guess who’s on low flow AND working on eating‼️ Hint: He’s an 8 lb 2 oz miracle that is blazing his own trail. It’s Garrin‼️ Our big boy got moved to low flow yesterday, against the recommendation of the respiratory therapist, and he’s rocking it. One of our absolutely favorite primary nurses moved Garrin to […]

A Pothole

Garrin had had a really good week and was able to have his CPAP settings weaned twice before hitting another bump in the road, a pothole, if you will. My husband came up Thursday night for a visit and some snuggles. Unfortunately, Garrin had several Brady episodes and was frequently desating, needing significantly more oxygen […]

First Halloween

Happy Halloween from our adorable little calf! The nitric oxide machine is off, and it has been moved out of our room again. Garrin’s oxygen needs have been stable even after removing the nitric. In addition to respiratory changes, Garrin had his first eye exam. Three nurses told me that the eye exam is not […]

A Different Baby

We had our first care conference today, which was a little intimidating at first. It was very reminiscent of the job interviews I’ve had in where the candidate, or parent in this case, is sat at a conference room table surrounded by a group of experts. Eight medical professionals, including the neonatologist, dietitian, NNP, nurse, […]

A Trach in His Future?

This precious boy and his mom had another eventful day today. I dropped my three older kiddos off at school this morning, so I missed morning rounds. By the time I got to the hospital, the nurse was preparing to give Garrin not one but two IVs in preparation for his fourth blood transfusion. Because […]

One Month Old

We’ve gone from counting minutes to hours to days to weeks to… ONE MONTH! August to September, one entire month has gone by since my sweet little baby arrived. To commemorate this milestone, Garrin had a slew of tests, all of which came back as expected. His chest X-ray looked the same if not slightly […]

No Crystal Ball

Good news: Garrin graduated… diaper sizes! He went from Huggies nano preemie sized diapers to micro preemie sized ones. While this might sound like a silly thing to celebrate, I am thrilled. Like the doctor says, one micropreemie step at a time. Garrin had a good night last night, and has had a fairly stable […]