Those Damn Lungs

It seems like an eternity since we had our beautiful son at home with us, since we actually really felt like a family of six. I worry some days that I took those weeks for granted by thinking that we had years to spend together. When I walk through my house, seeing Garrin’s baby things […]

The “If” is Now the “When”

The “if Garrin gets a tracheostomy” has transitioned to “when” he gets it.  I’ve gotten second, third, and fourth opinions, and the consensus is that yes, Garrin will undergo a tracheostomy, a procedure where a surgeon creates an airway to be used for long-term mechanical ventilation, as well as a gastrostomy, a procedure where a […]

A Miracle

The doctor that is on this week is very familiar with Garrin, as he was one of three doctors treating Garrin from early on. It was very reassuring to hear that he shares the other doctors’ recommendations. He reaffirmed the likelihood that Garrin will need a tracheostomy, a surgical procedure in which an airway is […]