I’m just going to say it: THIS SUCKS!
- It sucks that Garrin was born 17 weeks early.
- It sucks that he had to spend 147 days in the hospital before going home.
- It sucks that his time at home was cut short when he was admitted to a new hospital.
- It sucks that he is stuck in isolation with then never ending coronavirus.
- It sucks that he needs a tracheostomy.
- It sucks that he will have to be hospitalized for an unknown amount of time to recover from surgery.
- It sucks managing separate households hours apart.
- It sucks that we won’t be able to hear his voice for who knows how long.
- It sucks that he will need 24/7 nursing care to come home.
- And it sucks that there is no way to make plans.
I could say that everything about this situation sucks, except, that it really doesn’t.
- It doesn’t suck that my son beat the odds and survived his extremely premature birth.
- It doesn’t suck that he received top-notch care that helped to make going home a reality.
- It doesn’t suck that he is meeting many of his developmental milestones.
- It doesn’t suck that we’ve met people that we hope to call friends for life.
- It doesn’t suck that the pulmonary hypertension was caught before it had the chance to kill him.
- It doesn’t suck to have an amazing husband, family, and friends to share this journey with.
- It doesn’t suck that our faith has been strengthened.
- It won’t suck when Garrin comes back home.
- It won’t suck when he eventually gets decannulated.
- And it won’t suck when he has a future.
Some days, the “this sucks” list gets the best of me: I feel down, and the slightest hint of adversity makes me cry.
But most days, I look past the sucky parts and only see my blessings. On those days, my heart overflows with joy, and I am ready to take on the world.
