Blazing His Own Trail

Guess who’s on low flow AND working on eating‼️

Hint: He’s an 8 lb 2 oz miracle that is blazing his own trail.

It’s Garrin‼️

Our big boy got moved to low flow yesterday, against the recommendation of the respiratory therapist, and he’s rocking it.

One of our absolutely favorite primary nurses moved Garrin to low flow of 500 ml/minute and was able to titrate him down to 200 ml/minute.

And guess what‼️

He can go home on that amount of oxygen‼️

And he gets to start eating orally‼️

The goal will be to wean his O2 while he works on feeding and hopefully go home on no oxygen. Like everything else though it’s completely up to Garrin.

Garrin will most likely see an ENT doctor as his cry is still hoarse after having been intubated for 2 months. There is discussion as to whether his cry is hoarse because of the ET tube rubbing on his vocal cords or if it is related to his bronchopulmonary dysplasia. If it’s the latter, the good news is that Garrin will continue to grow new lung tissue for the next 5-7 years.

Garrin’s nurse says he is doing AMAZING‼️

What an awesome early Christmas present‼️

Though Christmas means so much more to me and my family, today’s quote relates directly to our feelings about this Christmas as part of our NICU journey.

“What is Christmas? It is tenderness for the past, courage for the present, hope for the future.” ~Agnes M. Pahro

Speaking of Christmas, one of our favorite nurses, the same one mentioned above, convinced me to go to the our family celebration yesterday. I’m so glad she did: It was so nice to see and catch up with everyone.

Santa brought a gift for our sweet Garrin, a gesture that touched my heart so deeply. Tears were running down my face as Santa got out the gift for the special little boy who couldn’t be there because he’s in the hospital. Such a special moment.

It was also fun to see my older kiddos’ excitement and eagerness to play with their cousins. The time that they’ve spent at each of their aunt and uncle’s house is another small blessing, packaged so neatly in the chaos of the journey it could have been missed.

God, you have been so good to us this year, and we are very much looking forward to rejoicing in the birth of your only son this Christmas season.

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