Another holiday has came and went as our sweet Garrin continues to plug away in the NICU. He handled his 2-month vaccines like a champ. I had been warned several times that he may need increased respiratory support during the 12-24 hours after the vaccines, but it was not as bad as I had anticipated. He did have a temporary increase in Brady episodes, but that seems to have subsided. Even the nursing staff thought that he handled the shots well. Thank the good Lord.
I met with Garrin’s health care team for our third care conference yesterday. There wasn’t really any big news shared as part of the discussion. The team has decided to let Garrin outgrow some of his meds (caffeine and diuretic). The doctor on this week indicated that Garrin is growing and recovering from his premature birth quite well. I think surprisingly well in some ways. He had his second eye exam today, which confirmed that his blood vessels have matured. Garrin will not need to see an eye doctor again for six months. After recovering from having his eyes dilated and mucked with, the NNPs were able to wean Garrin’s CPAP pressure to 8. Our boy hasn’t really seemed to notice the wean so far. If his oxygen needs remain stable, they will most likely try to wean him to 7 on Friday. Come on, baby!
Garrin continues to handle his condensed feeds well, and he is showing age appropriate signs that indicate he wants to eat. He goes to town on his pacifier and he roots around while we are doing skin-to-skin kangaroo care. I am hoping, possibly naively so, that feeding will come easy for him. Unlike many preemies, Garrin does not show signs of an oral aversion or reflux, which can pose issues when babies are trying to learn to feed.
As we look ahead to the future, there is still a chance that Garrin could make it home by Christmas, though it would probably take a small miracle. In my conversation with the doctor yesterday, he indicated that Garrin will be here for four weeks for sure. Coincidentally, Christmas is exactly four weeks from yesterday. Regardless if our sweet boy comes home as a Christmas baby or in the new year, we are so grateful for the amazing care that Garrin has received here.
When I thanked the doctor yesterday for his investment in Garrin and commended the other health care practitioners, he reminded me of the role I have played in Garrin’s recovery. Several people have commented on the connection between my presence and involvement in Garrin’s care and his progress. I have been so blessed to be able to be by Garrin’s side for the last fourteen weeks because of the amazing people I work with and for, all of which I am blessed to know.
I will be going back to work next Thursday. I am very much looking forward to returning but also a little nervous. It’s very similar to that feeling moms get when they have to take their newborns to daycare for the first time only Garrin’s daycare is the hospital and it’s 2 hours away. My husband and I will again work to figure out what “normal” looks like and who will cover what so we can be parents to all of our children, those at home and sweet little Garrin. It will come, and just when we think we have it figured out, it will be Garrin’s due date and then Christmas, days that we are patiently awaiting.
“I believe that a trusting attitude and a patient attitude go hand in hand. You see, when you let go and learn to trust God, it releases joy in your life. And when you trust God, you’re able to be more patient. Patience is not just about waiting for something… it’s about how you wait, or your attitude while waiting.” ~Joyce Meyer
Fun fact: Tonight was the first time someone besides the health care professionals, my husband, or I have held baby Garrin. Good job, Aunt E.