We’ve gone from counting minutes to hours to days to weeks to… ONE MONTH! August to September, one entire month has gone by since my sweet little baby arrived.
To commemorate this milestone, Garrin had a slew of tests, all of which came back as expected. His chest X-ray looked the same if not slightly better, which we were thrilled about as we have been told it will be quite awhile before they see significant improvement on the X-ray. The nitric oxide is officially off, and we will be increasing his feedings tomorrow because he is now 880 grams or 1 lb 15 oz.
The doctor came in today and shared the three-day plan with us. Again, we feel like this is a big step forward as we went from having hour-to-hour plans in the beginning to being able to look ahead three days, barring any unexpected changes in Garrin’s clinical picture. This little boy is lucky because he gets another poke-free day tomorrow. No blood tests for another 24 hours.
While we have lots of things to celebrate, our hearts are hurting tonight for our neighbors down the hall. Their sweet baby boy unexpectedly earned his angel wings. We don’t know them personally, but I ask that you keep them in your prayers as they cope with this unimaginable loss.
Garrin has had several relatively uneventful days, good days we’ll call them, during his month long stay in the NICU, but it’s important for us to remember that the good days and other milestones bring us no closer to a guarantee of him coming home. Things can change in an instant in the NICU, and really anywhere in life. It’s so important that we live for the moment that we are in, a lesson that we have been reminded of several times during this journey.
“Would you like to know your future? If your answer is yes, think again. Not knowing is the greatest life motivator. So enjoy, endure, survive each moment as it comes to you in its proper sequence — a surprise.” ~Vera Nazarian